Botox Injections for Headache Relief – My Experience

I know this is not even close to what we normally post.  It has nothing to do with crafts or cooking or décor or anything like that, unless you take into account the fact that for now it has  drastically diminished my capacity to do much of any of them.

The only reason I am posting about this is to warn anyone who might be considering this line of treatment about what I am going through from it and to encourage others to please do your homework before undergoing this treatment.

Sandie

Anyone that has read any of our posts may have seen a reference here or there, by me, regarding my car accident in Jan/2016, my recovery/symptoms from TBI (traumatic brain injury)/PCS (post concussion syndrome), an eye issue/injury that distorts how I see everything, and having a headache literally since the accident… over a year and a half now.

I have been to see neurologists, ophthalmologists, chiropractors, neuro-ophthalmologists etc.,  and tried different treatments… acupuncture, massage, I am on 6 different medications and have tried many more.  Botox injections were recommended to me by one of the Neurologists I have seen. I thought to myself that if there was even a chance it would help, that I could even get one day without some degree of headache, that it was worth trying! Boy, was I wrong!

On Friday, I had my appointment to have the Botox injections, something I had been waiting months for.  I received 38 needles in my forehead, neck, around my hairline and all over the top and sides of my head.  While the needles didn’t hurt a whole lot, they did sting, and when you think about 38 stings lol, it wasn’t the most pleasant experience but I was willing to go through a few minutes of being uncomfortable if it was going to bring me headache relief and hopefully also relieve my stiff neck.  The needles were the least of my problems.

The ONLY things I was told before, during and after the treatment was not to lay down for 4 hours, not to brush my hair or rub my face and not to exercise or exert myself the rest of the day. I followed these directions to the letter.

In the days since, I have been suffering non stop.  Not only are my headaches worse right now, my forehead feels like concrete, my eyes are swollen, unevenly at that (Kim told me my face looks confused lol), I have big black marks… almost shiners around both eyes, I can’t feel my cheeks or chin and the first night I could barely sleep because my head felt lumpy.

The first day or two I wrote it off as the treatment needing to “take effect,” and just dealt with it.  We are now on my 5th day and none of it is any better.  I told Chris that my head feels like a concrete Gargoyle statue and that it feels like if I tilt my head too far it will roll off like a bowling ball, my headache is at what I call Skullcracker status, my forehead is still solid for lack of a better term, I am totally exhausted and I am very uncomfortable and miserable. They say the “relief” you are supposed to experience from the injections is supposed to last 3 months… does this mean what I am feeling now will also last 3 months?  I certainly hope not!

The loss of feeling in my cheeks and chin is what has had me the most concerned.  I didn’t get injections anywhere near where this numbness is.  Chris said maybe it leaked lol, but it was injected… how could it “leak” into my cheeks and chin… and if it did, where else is it leaking into?

I called the Neurologist’s office that did the injections.  They told me they cannot provide medical information over the phone and if I am that concerned, go to the emergency department. Really?  They wouldn’t even tell me if this was normal or if it was something I SHOULD go to the hospital for.

It really makes me wonder why people do this for purely cosmetic reasons.  It has to feel the same way, you would think, or am I the exception?  Either way, I know I will not be keeping the appointment they made for me for another round in December.

I didn’t write this post just to whine.  I would just like to caution anyone else that may be considering having Botox injections for headache relief to really do their homework.  I didn’t.  I have just been trudging along, doing whatever the doctors tell me to do in the hopes that something will help. Botox injections most certainly did not.  Right now it feels like it has made things worse.

 

 

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6 thoughts on “Botox Injections for Headache Relief – My Experience

  1. Oh my gosh. I am so sorry you’re going through this, I cannot imagine. I get about 2-3 migraines a year. You know, those “please do not talk to me, make a sound, turn on the light or even LOOK at me” migraines. My dad gets them more frequently and once considered this treatment. Now I am glad he decided against this.

    I hope you feel better soon… Will you be going to the hospital?

    Liked by 1 person

    • Thank you for the support. I was really unsure about posting something like this because it is so off topic with what we cover on our blog.
      If I was able to reach one person, it was worth sharing something so personal. ☺
      I did not go to the hospital, luckily I was able to get an appointment with my GP today.
      What I am experiencing is a side effect that about 5% of all patients go through. Guess I’m one of those lucky few. She couldn’t definitively tell me when this would go away because everyone does react differently but that eventually it will stop.
      I sure wish I had been informed.

      Like

  2. Wow, I’m so sorry to hear that you had such a bad reaction! I really feel for you, I know what it’s like to want to try anything for some pain relief. I still deal with chronic pain, but luckily it is not as bad as it was a few years ago, so I know how debilitating it can be. I hope the side effects resolve quickly and that you find something that does help.

    Liked by 1 person

  3. I’m so sorry that something that was supposed to bring relief made things worse. I know how desperate you can be to try ANYTHING when you have a chronic problem only to have things go from bad to worse. Been there. Hope it gets better soon and thanks for the warning.

    Liked by 1 person

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